“Your son is on CBD oil. He is terminated from the clinical trial. Don’t bother ever showing up again,”
13-Year-Old Denied Life-Saving Treatment Because He Used CBD Oil
March 5, 2018 By Burgess Powell
Kaden Hartman of Virginia Beach is 13-years-old and lives with Niemann-Pick disease, a condition known colloquially as Child’s Alzheimer’s. There are approximately 500 to 100 cases of diagnosed NPD today, making it extremely rare. Children with Niemann-Pick disease experience rapid physical and mental deterioration. Eventually, they’re faced with seizures and problems with mobility, eating, and communication. According to the National Niemann-Pick Disease Foundation, most children suffering from Child’s Alzheimer’s don’t live to age 20. Kathy Hartman, the mother of this 13-year-old denied life-saving treatment because he used CBD oil, reached out to High Times to explain what happened.
Kaden’s FDA-Approved Treatment
“When there’s nothing else out there to save his life, the FDA will approve an experimental medicine, and he’s been on it for almost three years,” Mrs. Hartman explains.
The drug the FDA approved for Kaden is called Cyclodextrin and has been effectively treating Kaden’s Niemann-Pick disease.
Doctors predicted that Kaden wouldn’t live to age 13, but he’ll be 14 in April.
“It’s definitely working,” says Mrs. Hartman.
In addition to the experimental Cyclodextrin, Kaden has been taking CBD oil since he started experiencing seizures, a common consequence of Niemann-Pick disease.
“It slows down seizures by, I think, 60 percent,” Mrs. Hartman says of CBD after doing research on the non-psychoactive compound of cannabis on her own.
Watching her son experience 10 to 20 seizures daily, Mrs. Hartman decided to give CBD a shot, under the supervision of Kaden’s primary neurologist.
“It seems to be working great,” Mrs. Hartman told Kaden’s neurologist who closely monitored his CBD use.
With CBD, Kaden avoided the negative side-effects associated with anti-seizure medication.
According to Kaden’s mother, the only potential results of CBD use are slight drowsiness and a better appetite.
Going off CBD, however, has had serious consequences.
After Mrs. Hartman received a letter from the Virginia Commonwealth University Medical Center (VCU), the hospital treating Kaden, stating that Kaden will be taken off the study if he uses CBD, she stopped giving him the herbal supplements.
Off CBD, Kaden experiences many seizures. He has since fractured his skull, concussed himself, and developed two blood clots in his brain.
Not only was this 13-year-old denied life-saving treatment because he used CBD oil, but CBD oil itself was a lifesaving treatment for seizures.
Neurologists who work with Niemann-Pick disease patients recommend CBD Oil
In addition to Kaden’s personal experience with CBD’s benefits, two of his neurologists recommended it.
His primary neurologist of 8 years suggested that Kaden take CBD to cope with his seizures.
Dr. Ralph Northam, Kaden’s former pediatrician who is now the governor of Virginia, wrote Kaden a prescription for cannabidiol.
Though Mrs. Hartman didn’t fill out this prescription at the time, it allowed Kaden access to CBD much more potent than the health store variety he later took.
Dr. Rebecca Caffrey, a friend of the Hartman family, explains, “CBD is the drug of choice for treating seizures in NPC kids.”
She cites another case of two young girls who suffer from Niemann-Pick disease and began taking CBD oil to minimize their seizures.
Not only did CBD help these girls—the daughters of Kathy Hartman’s friend Chris Hempel—but they are allowed to continue their other treatment, which is of the same nature as Kaden’s.
Four days after sending Mrs. Hartman that threatening letter, VCU gave her a call.
“Your son is on CBD oil. He is terminated from the clinical trial. Don’t bother ever showing up again,” Mrs. Hartman says, summing up her conversation.